Books

Abel J and Kellehear A (eds) (2022) Oxford textbook of public health palliative care. Oxford: Oxford University Press

Abel, J. and Clarke, L (2020) The Compassion Project: A case for hope and humankindness from the town that beat loneliness.

Barry, V. and Patel. M. (2013).  An Overview of Compassionate Communities in England. London, Murray Hall Community Trust and National Council for Palliative Care.

Conway, S. (ed. 2011).  Governing Death & Loss: Empowerment, involvement, participation. Oxford, Oxford University Press.

Horsfall, D., & Higgs, J. (2015) Palliative care: Living and dying at home. In Tasker D., Higgs J., & Loftus, S. (Eds). Community-Based Healthcare: The Search for Mindful Dialogues. Rotterdam, The Netherlands: Sense

Horsfall, D., & Higgs, J. (2014). People caring: Negotiating the space between an ethic of caring and keeping your distance. In J. Higgs, A. Croker, D. Tasker, J. Hummell & N. Patton (Eds.), Health practice relationships (pp. 85-92). Rotterdam, The Netherlands: Sense.

Kellehear, A. (1999).  Health Promoting Palliative Care. Melbourne: OUP.  (If you click on the title you can read it now, for free!).

Kellehear, A. (2005). Compassionate Cities: Public Health and End-of-Life Care. London:Routledge.

Kellehear, A. & Young, B. (2007) Resilient Communities. In B. Monroe & D. Oliviere (eds) Resilience in Palliative Care: Achievements in Adversity. Oxford, Oxford University Press, pp 223-238.

Rumbold, B. (2011). Health promoting palliative care and dying in old age. In Gott, M. & Ingleton, C. (Eds.) Living with ageing and dying: palliative and end of life care for older people (pp. 75-89). Oxford: Oxford University Press.  (If you click on the title you can read it now, for free!).

Sallnow, L. Kumar, S. and Kellehear, A. (eds) (2012).  International Perspectives in Public Health and Palliative Care. Abingdon, Routledge.

Reports

Sallnow, L., Smith, R., Ahmedzai, S. H., Bhadelia, A., Chamberlain, C., Cong, Y., Doble, B., Dullie, L., Durie, R., Finkelstein, E. A., Guglani, S., Hodson, M., Husebø, B. S., Kellehear, A., Kitzinger, C., Knaul, F. M., Murray, S. A., Neuberger, J., O’Mahony, S., … Wyatt, K. (2022). Report of the Lancet Commission on the Value of Death: bringing death back into life. The Lancet (British Edition), 399(10327), 837–884. https://doi.org/10.1016/S0140-6736(21)02314-X

Horsfall D., Yardley A., Leonard R., Noonan K. & Rosenberg J. (2015) End of Life at Home: Co-creating an Ecology of Care. University of Western Sydney & Cancer Council of NSW.

Horsfall D., Noonan K., & Leonard R. (2011). Bringing our dying home: creating community at end of life. Research Report. University of Western Sydney & Cancer Council of NSW.



Journal Publications

Abel, J., Bowra, J., Walter, T. and Howarth, G. (2011).  'Compassionate community networks: supporting home dying.' BMJ Supportive & Palliative Care 1 (2), pp. 129-133.

Abel. J., Walter, T., Carey, L.,  Rosenberg, J., Noonan, K., Horsfall, D. et al. (2013) Circles of care: Should community development redefine the practice of palliative care? BMJ Supportive & Palliative Care 3: (4) 436-443.

Aoun S, Noonan K, Thomas G, Rumbold B (2021). Traumatised, angry, abandoned but some empowered: A national survey of experiences of family caregivers bereaved by Motor Neurone Disease. Palliative Care and Social Practice. 2021, Vol. 15: 1–10 DOI: https://doi.org/10.1177/26323524211038584

Aoun S, Richmond R, Jiang L, Rumbold B (2021). Winners and losers in palliative care service delivery: Time for a public health approach to palliative and end of life care. Healthcare, 9, 1615. https://doi.org/10.3390/healthcare9121615

Aoun S, Rumbold B. (2022) Public health approaches to bereavement support. Oxford Textbook of Public Health Palliative Care, Abel J, Kellehear A (eds) Oxford University Press.

Aoun S. Stegmann R, Deleuil R, Momber S, Cuddford L, Phillipps M, Lyon M, Gill F. (2022). “It is a whole different life from the life I used to live”: Assessing parents’ support needs in paediatric palliative care. Children. 9, 322. https://doi.org/10.3390/children9030322.

Aoun, S. M. (2020). Bereavement support: From the poor cousin of palliative care to a core asset of compassionate communities. Progress in Palliative Care, 28(2), 107-114.

Aoun, S. M., Richmond, R., Gunton, K., Noonan, K., Abel, J., & Rumbold, B. (2022). The Compassionate Communities Connectors model for end-of-life care: implementation and evaluation. Palliative Care and Social Practice, 16, 26323524221139655–26323524221139655. https://doi.org/10.1177/26323524221139655

Aoun, S. M., Richmond, R., Noonan, K., Gunton, K., & Rumbold, B. (2022). “The more you give, the better it is for you. You know the reward is greater than the effort”: the Compassionate Communities Connectors’ experience. Palliative Care and Social Practice, 16, 26323524221139874–26323524221139874. https://doi.org/10.1177/26323524221139874

Aoun, S.M., Noonan, K., Thomas, G., & Rumbold, B. (2021) Traumatised, angry, abandoned but some empowered: a national survey of experiences of family caregivers bereaved by motor neurone disease. Palliative Care and Social Practice, 15. https://doi.org/10.1177/26323524211038584.

Ashby, M. (2013) Caring for dying patients is not about prolonging life at all costs. BMJ 2013;346:f3027 doi: 10.1136/bmj.f3027

Buckley, J. (2002) 'Holism and a health promoting approach to palliative care.'  International Journal of Palliative Nursing, 9 (10), pp. 505-508.  

Conway, S. (2008).  'Public health and palliative care – principles into practice?' Critical Public Health, 18 (3), pp. 405-415.

De Vleminck A, Paul S, Reinius M, Sallnow L, Tishelman C, Cohen J. (2022) Engagement of specialized palliative care services with the general public: A population-level survey in three European Countries. Palliative Medicine. https://doi.org/10.1177/02692163221079546

D'Eer L, Quintiens B, Van den Block L, Dury S, Deliens L, Chambaere K, Smets T, Cohen J. (2022) Civic engagement in serious illness, death, and loss: A systematic mixed-methods review. Palliative Medicine. 2022 Mar 14:2692163221077850. doi: https://doi.org/10.1177/02692163221077850. Epub ahead of print. PMID: 35287517.

Grindrod, A. (2020). Choice depends on options: A public health framework incorporating the social determinants of dying to create options at end of life. Progress in Palliative Care, 28(2), 94-100.

Haraldsson, E., Clark, P. and Murray, S.A. (2010). 'Health-Promoting Palliative Care arrives in Scotland.' European Journal of Palliative Care 17 (3), pp.130-132.

Horsfall, D., Leonard, R., Noonan, K., & Rosenberg, J. (2013).Working together–apart: Exploring the relationships between formal and informal care networks for people dying at home. Progress in Palliative Care (ISSN: 09699260) DOI:10.1179/1743291X12Y.0000000047

Horsfall, D., Noonan, K., Leonard, R. (2012) Bringing our Dying Home: Creating community at end of life, Health Sociology Review 21(4) 373-382.

Johansson, T., Tishelman, C., Cohen, J., Eriksson, L.E. & Goliath, I. (2021) Continuums of Change in a Competence-Building Initiative Addressing End-of-Life Communication in Swedish Elder Care. Qualitative Health Research, 31(10): 1904-1917. https://doi.org/10.1177/10497323211012986.

Kellehear, A. & O’Connor, D. (2008) Health Promoting Palliative Care: A practice example. Critical Public Health (UK) 18, 1, pp 111-115.

Kellehear, A. (1984).  'Are we a ‘death denying’ society? A sociological review.'  Social Science and Medicine, 18 (9), pp. 713-23.

Kellehear, A. (2004).  'Third-wave public health? Compassion, community and end of life care.'  International Journal of Applied Psychoanalytic Studies, 1(4), pp. 313-323.

Kellehear, A. (2013). Compassionate communities: End of life care as everyone’s responsibility. Quarterly Journal of Medicine (UK) 106, 12, pp 1071-1076.

Kellehear, A. (2020). Compassionate Cities: global significance and meaning for palliative care. Progress in Palliative Care, 28(2), 115-119.

Kumar, S. (2020). Community participation in palliative care: Reflections from the ground. Progress in Palliative Care, 28(2), 83-88.

Leonard, R., Horsfall, D., Noonan, K. (2013). Identifying changes in the support networks of end of life carers using social network analysis, BMJ Supportive and Palliative Care, doi:10.1136/bmjspcare-2012-000257

Lomas, J. (1998) Social Capital and Health: Implications for public health and epidemiology. Social Science & Medicine 47 (9) 1181-1188.

Matthys O, Dierickx S, Deliens L, Lapeire L, Hudson P, Van Audenhove C, De Vleminck A, Cohen J. (2022) How are family caregivers of people with a serious illness supported by healthcare professionals in their caregiving tasks? A cross- sectional survey of bereaved family caregivers. Palliative Medicine. doi: https://doi.org/10.1177/02692163211070228.

Moeke-Maxwell, T., Mason, K., Williams, L., & Gott, M. (2020). Digital story-telling research methods: Supporting the reclamation and retention of indigenous end-of-life care customs in Aotearoa New Zealand. Progress in Palliative Care, 28(2), 101-106.

Murray, P. (2020). An elegy for every little thing. Progress in Palliative Care, 28(2), 120-122.

Noonan K., Horsfall D., Leonard R., & Rosenberg J.P.  (2016). Developing Death Literacy. Progress in Palliative Care.  doi: 10.1080/09699260.2015.1103498

Noonan, K., Rumbold, B., & Aoun, S. M. (2022). Compassionate community connectors: a distinct form of end-of-life volunteering. Progress in Palliative Care, (ahead of print)1–10. https://doi.org/10.1080/09699260.2022.2090051

Noonan, K., Sallnow, L., & Richardson, H. (2020). Ten years of public health palliative care conferences: a critical reflection for the next decade. Progress in Palliative Care, 28(2), 78-82.

O’Mara-Eves A, Brunton G, McDaid D, Oliver S, Kavanagh J, Jamal F, et al. (2013) Community engagement to reduce inequalities in health: a systematic review, meta-analysis and economic analysis. Public Health Research 1(4).

Paul, S. and Sallnow, L. (2013) 'Public health approaches to end of life care in the UK: An online survey of palliative care services.'BMJ Supportive & Palliative Care, Published Online First doi:10.1136/bmjspcare- 2012-000334.

Payne S, Hudson P, Grande G. Family carers research: What progress has been made? Palliative Medicine. 2022 Feb 17:2692163211037855. doi: https://doi.org/10.1177/02692163211037855.

Quintiens B, D'Eer L, Deliens L, Van den Block L, Chambaere K, De Donder L, Cohen J, Smets T. (2022) Area-Based Compassionate Communities: A systematic integrative review of existing initiatives worldwide’ Palliative Medicine, Vol. 36(3) 422–442. https://doi.org/10.1177%2F02692163211067363

Quintiens, B., Smets, T., Chambaere, K., Van Den Block, L., Deliens, L., & Cohen, J. (2022). Researching two Compassionate Cities: study protocol for a mixed-methods process and outcome evaluation. Palliative Care and Social Practice, 16, https://doi.org/10.1177/26323524221137601

Richardson, J. (2002).  'Health promotion in palliative care: the patient’s perception of therapeutic interaction with the palliative care nurse in the primary care setting.'  Journal of Advanced Nursing, 40, pp. 432-440.

Rodeyns, J., Joson, A., Smets, T. & De Backer, F. (2021) The meaning of art in palliative care from the end users' perspective. Arts & Health, https://doi.org/10.1080/17533015.2021.1942094.

Rosenberg J., Horsfall D., Leonard R., & Noonan K. (2015) Informal caring networks for people at end of life: Building social capital in Australian communities, Health Sociology Review, 24:1, 29-37, DOI: 10.1080/14461242.2014.999400

Rosenberg, J. P., Horsfall, D., Sallnow, L., & Gott, M. (2020). Power, privilege and provocation: Public Health Palliative Care today. Progress in Palliative Care, 28(2), 77-77.

Rumbold B, Aoun S (2021). Palliative and end-of-life care service models: to what extent are consumer perspectives considered? Healthcare, 9, 1286. https://doi.org/10.3390/healthcare9101286

Rumbold, B., Aoun, S. (2014). Bereavement and palliative care: A public health perspective. Progress in Palliative Care 22(3), 131-135.  

Salau, S., Rumbold, B., and Young, B. (2007). From concept to care: enabling community care through a health promoting palliative care approach. Contemporary Nurse, 27 (1), pp. 132-140.

Sallnow, L. and Paul, S. (2014) Understanding community engagement in end of life care: developing conceptual clarity. Critical Public Health http://dx.doi.org/10.1080/09581596.2014.909582 .

Sawyer JM, Sallnow L. (2022) The evidence for the effectiveness of a public health palliative care approach. Oxford Textbook of Public Health Palliative Care, Abel J, Kellehear A (eds) Oxford University Press.

Sawyer JM. (2022) Understanding dying as a focal point for defining an integrative approach to health and social care. Journal of Ayurveda and Integrative Medicine. https://doi.org/10.1016/j.jaim.2022.100543

Scott, J. F. (1992). Palliative care education in Canada: Attacking fear, promoting health.  Journal of Palliative Care 8 (1), pp. 47-53.

Seitz, K., Cohen, J., Deliens, L., Cartin, A., Castañeda de la Lanza, C., Cardozo, E. A., Marcucci, F. C., Viana, L., Rodrigues, L. F., Colorado, M., Samayoa, V. R., Tripodoro, V. A., Pozo, X., & Pastrana, T. (2022). Place of death and associated factors in 12 Latin American countries: A total population study using death certificate data. Journal of Global Health, 12, 04031–04031. https://doi.org/10.7189/jogh.12.04031

Siden, E. G., Barwich, D., Carter, R. C., & Hassan, E. (2021). Part of the solution: A survey of community organisation perspectives on barriers and facilitating actions to Advance Care Planning in British Columbia, Canada. Health Expectations, 0, 1-10. doi:10.1111/hex.13390

Stajduhar, K. I. (2020). Provocations on privilege in palliative care: Are we meeting our core mandate?. Progress in Palliative Care, 28(2), 89-93.

Taels, B.,Hermans, K., Van Audenhove, C., Boesten, N., Cohen, J. & Declercq, A. (2021) How can social workers be meaningfully involved in palliative care? A scoping review on the prerequisites and how they can be realised in practice. Palliative Care & Social Practice, 15 https://doi.org/10.1177/26323524211058895.

Vandenbogaerde I, De Vleminck A, Cohen J, Verkissen MN, Lapeire L, Ingravallo F, Payne S, Wilcock A, Seymour J, Kars M, Grønvold M, Lunder U, Rietjens J, van der Heide A, Deliens L. Advance care planning-family carer psychological distress and involvement in decision making: the ACTION trial. BMJ Support Palliat Care. 2022 Feb 17 doi: https://doi.org/10.1136/bmjspcare-2020-002744

Vandenbogaerde, I., Cohen, J., Hudson, P., Van Audehove, C., Deliens, L., & De Vleminck, A. (2022). Support from healthcare professionals in empowering family carers to discuss advance care planning: A population-based survey. Palliative Medicine, https://doi.org/10.1177/02692163221135032

Vanderstichelen S, Deliens L. (2022) Complexities and challenges in public health palliative care research. Oxford Textbook of Public Health Palliative Care, Abel J, Kellehear A (eds) Oxford University Press.

Vanderstichelen S, Dury S, De Gieter S, Van Droogenbroeck F, De Moortel D, Van Hove L, Rodeyns J, Aernouts N, Bakelants H, Cohen J, Chambaere K, Spruyt B, Zohar G, Deliens L, De Donder L; Compassionate Communities Centre of Expertise (COCO) Consortium. (2022) Researching Compassionate Communities from an interdisciplinary perspective: the case of the Compassionate Communities Centre of Expertise (COCO). Gerontologist. 2022 Mar 9:gnac034. DOI: . Epub ahead of print. https://doi.org/10.1093/geront/gnac034

Vanderstichelen S. (2022) Palliative Care Volunteering: Pressing Challenges in Research. Palliative Medicine. [editorial] doi: https://doi.org/10.1177/02692163221089483

Vanderstichelen, S., Pelttari, L. & Scott, R. (2021) Evaluating the EAPC Madrid Charter on Volunteering in Hospice and Palliative Care: reflections on impact. Progress in Palliative Care, https://doi.org/10.1080/09699260.2021.1964678

Dissertations

McLoughlin, K. (2012).  Identifying and changing attitudes toward palliative care: an exploratory study. PhD thesis, National University of Ireland Maynooth.  Available Online.

Rosenberg, J.P. (2007).  A study of the integration of health promotion principles and practice in palliative care organisations. Melbourne: QUT IHBI.  Available Online.